It started over a decade ago, when Grace had her first seizure. Actually, it started years before that, when her big Sis had her first seizure. Luckily, she outgrew her seizures, but Gracie hasn't been able to...yet.
Through the years, we have learned so much about fragility, and about strength. We have learned about medications, we have learned about other disorders that go along with Gracie's...we have learned about a whole world of neurological, physical, and medical disorders. We have learned the hard way that, sometimes, the world can be hard on people who don't deserve it - and we have learned that the things that we all need the most in times of struggle are help...and hope. Support. Kindness.
That's why we're here - it's what we're here to do. It is time to spread some kindness, some understanding, some tolerance and some support.
We can't do it alone, though. We need others to help us, to give the support that is so greatly needed to those who so greatly need it...those with complex medical needs - but also, those who care for them every day. Because another thing that we have learned over the years is that caring for our loved ones is stressful - worth it, sure, but still a stressor on the body, the mind, and the emotions. We have been a part of that life for so many years, and we know that there is a great need for support for so many struggling with so many disorders, and for their loved ones.
That is the reason for our motto...because "You may see us struggle, but you will never see us struggle alone."